5 July 2010, 12:50 pm
in Lansing Mi and also Mayo clinic. After many chemo treatments for the disease failed we were sent to Karmanos in Detroit whose path. team said large cell b lymphoma non-hodgkins. Treatments for this new dianosis also failed. We were then referred to U of M in Ann Arbor. They path. reports suggested Hodgkin's again and basically sent us on our way because chemo treatments are not working for either and cancer tumors spreading too fast. We again went to Karmanos to look at clinical trials and they again reviewed path reports and said "not Hodgkin's" so we do not qualify for their trial (they need 100 percent dianosis). We are now going to MD Anderson in Texas (If they will accept us) In the meantime going to try to keep fast growing tumors at bay with another type chemo (I believe GVD??) Has ANYONE every had or know someone who is going through this devastating experienced. My son is NOT ready to give up?? Very frustrating!!! Was just contacted by MD Anderson and was informed they do not take out of state medicaid. Consultation down payment required of $48,800!!!... Read More »
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